This Wiki is a public entry point to the password-protected Wiki to develop the PEGASUS Project


The idea to do a project on Privacy in E-Governance and Senior Users' Security (PEGASUS) will first entail a scientific investigation and comparison of the use of electronic identity cards (eID) in several EU member states plus Switzerland. The range of services offered by these eID smart cards is expected to appeal to citizens, but to entail a number of privacy risks.

Please contact for permission to join thomasATthomasruddyDOTorg Please specify whether your role in the project would be as a stakeholder in the survey, a country contact (ones are needed esp. for the U.K., Denmark, Norway and Canada) or a sponsor.

Currently our Privacy Policy - Status: 2009 Nov. 20 - is in effect.

Recent and upcoming public events
Date (newest on top)
Conference
PEGASUS participation?
2019
New EU privacy directive could go into effect (according to the Green European MEP Jan-Philipp Allbrecht)

2014 Sep 24-26
5th Global Conference on Digital Memories, Oxford, call for presentations

2014 June 04-05
2014 Health Privacy Summit, Washington DC

2014 Apr 27-30
Human Genome Meeting 2014 Genome Variation and Human Health, Geneva

2014 Jan 21-24
Computers Privacy Data Protection, Brussels
yes
2014 Jan 01
Horizon 2020 starts off with the launch of its first calls for €80 billion of research funding;"for researchers receiving funding from its programme between 2014 and 2020, open-access publishing 'will be the norm'" says the TES.

2014
New European Commission and a new European Parliament

2013 by end of year
Adoption of legislative acts by Parliament and Council on Horizon 2020

2013 Dec 05
Privacy in 2014, Amsterdam

2013 Nov 7-8
Public and Private Health: Genomics, Medicine and Society, Heidelberg
yes
2013 Sep 27-30
Freedom Not Fear, Brussels

2013 Sep 17-18
Open Knowledge, Geneva

2013 Sep 16-19
E-government, Koblenz, Germany

2013 Jul 10-12
Planning Later Life – Bioethics and Politics in Aging Societies, Goettingen

2013 Jul 06-11
World Libre Software and Culture Meeting (WLSM), Brussels

2013 Jul 03-04
TELEMED 2013 - 18. Nationales Forum für Gesundheitstelematik und Telemedizin, Berlin

2013 Jun 20
Good Governance in (Clinical) Research with Human Data and Tissue, Geneva

2013 Jun 17-21
Eighth International Summer School on Privacy and Identity Management for Emerging Services and Technologies, Radboud University, Nijmegen, the Netherlands

2013 Jun 05-06
The 3rd International Summit On the Future of Health Privacy, Washington, DC

2013 May 16
"European citizens' rights: patients' involvement and Cross Border Care", Brussels
yes
2013 May 16-17
Governing algorithms, New York NY

2013 May 11-12
Quantified Self Europe Conference, Amsterdam

2013 May 06-08
Re:publica, Berlin

2013 Apr 25-26
Genomes, Environments and Traits, Boston , video
yes
2013 Mar 24-24
LibrePlanet 2013: Commit Change, Cambridge, MA

2013 Mar 4-5
Age, gender and disability discrimination in insurance, SwissRe, Zurich

2013
European Year of Citizens

2012 Dec 13-14
Workshop on New Analyses of Expatriation, Paris, France

2012 Dec 04
"Verbraucherschutz in der digitalen Welt" (consumer protection in the digital world) with Markus Beckedahl, Stuttgart, Germany

2012 Dec 03-13
World Conference on International Telecommunications (WCIT), Dubai: official site; 2012 warning about event's significance by FCC in WSJ on ISOC; rebuttal in TheRegister that warning is pointless; advance analysis

2012 Nov 29-30
For Your Eyes Only, Brussels

2012 Nov 28
Creating an Age-Friendly EU by 2020, Brussels

2012 Nov 20-21
IDentity.Next, The Hague

2012 Nov 11-15
Semantic Web, Boston

2012 Nov 06-7
Moderner Staat, Berlin

2012 Oct 29-Nov 02
UNCITRAL Working Group IV: Electronic Commerce (tentative dates), Vienna

2012 Oct 18-20
What Are European Alternatives to Google and Facebook? Digital Backyards | International Conference with forum and wiki for online participation

2012 Oct 17-18
Internet and Privacy, Alexander von Humboldt Institute for Internet and Society (HIIG), Berlin

2012 Oct 10-11
Annual Privacy Forumcoorganized by the European Network and Information Security Agency (ENISA),Cyprus

2012 Oct 07-10
Amsterdam Privacy Conference (APC 2012), Amsterdam, The Netherlands, including Privacy and Next-Generation Sequencing

2012 Oct 04-07
International summit of community wireless networking, Wireless Summit, Barcelona, (2010 edition)

2012 Sep 14-17
Freedom not Fear 2012, Brussels
yes
2012 Sep 12-14
Governing Pooled Knowledge Resources: Building Institutions for Sustainable Scientific, Cultural and genetic Resources Commons, Louvain-la-Neuve, Belgium
yes
2012 Sep 03-06
Third International Workshop on Security and Privacy in Social Networks 2012 (SPSN-2012) in conjunction with IEEE SocialCom 2012, Amsterdam, The Netherlands

2012 Aug 21-26
Campus Party, security talks, Berlin

2012 Jul 13-15
Hackers on Planet Earth (HOPE), New York

2012 Jul 09-11
International ePortfolio & Identity conference, London

2012 Jul 09-12
Circumvention Tools Hackfest, in NYC, before HOPE, Jul 13-15

2012 Jul 09-12
RMLL Genève - World Summit of Free Software les conférences, le village, l’install party

2012 Jul 07-08
RMLL Genève - World Summit of Free Software le week end pour le grand public

2012 Jun 28
Open Government Data für die Schweiz, German/Engl./French, with Nigel Shadbolt, Bern, Switzerland

2012 Jun 25-July 6
United Nations Commission on International Trade Law (UNCITRAL) confers on electronic transferable records, identity management and electronic commerce, NY

2012 Jun 18
SEMIC 2012 - Semantic Interoperability Conference 2012, Brussels

2012 Jun 12-13
Telco 2.0, London (follow-up from World Economic Forum project)

2012 Jun 11
Identity, London

2012 Jun 06
Making financial services work for consumers: A global challenge, Washington, DC

2012 Jun 05
Transatlantic Consumer Dialogue (TACD), 13th Annual Meeting, US State Department, Washington DC

2012 May 30
Cross-Border Healthcare in Europe: Towards Clarity, Quality and Synergy between Member States, Brussels

2012 May 02-04
re:publica, Berlin, archive of videos partially in English

2012 Apr 24-25
Cyber Security and Privacy EU Forum 2012 (CSP EU FORUM), Berlin
workshop
2012 Apr 20-21
Sage Bionetworks Commons Congress, "Building Better Models of Diseases Together" - moving beyond the current medical information system and its rewards, San Francisco, CA; Lawrence Lessig keynote, recording of webcast sessions: http://bit.ly/IeH31y ; presentation by John Wilbanks, Kauffman Foundation on Slideshare

2012 Mar 28
Document Freedom Day (everywhere)

2012 Mar 28
Document Freedom Day: Open standards in the eBook market, Brussels

2012 Mar 28
Prof. Dr. Robin Mansell will present the results of her new book ‘Imagining the Internet: Communication, Innovation, and Governance’, Brussels

2012 Mar 27
The European eID Interoperability Concepts and Compliance Conference: Cross-border service provision supporting national eIDs, Biel, Switzerland

2012 Mar 24
Orgcon with Lawrence Lessig, Cory Doctorow, Wendy Seltzer, London

2012 Mar 19
Security and Social Networking, Lugano, Switzerland

2012 Mar 15
NSTIC Identity Ecosystem Governance Workshop, Washington DC + Webcast

2012 Mar 06
Secure idenTity acrOss boRders linKed (STORK) Project presents results at CeBIT Fair, Hanover, Germany

international ePortfolio & Identity conference, London || ||
2012 Feb 23
Internationales Rechtsinformatik Symposion , Salzburg




2012 Feb 06-7
Semantic Tech & Business Conference, Berlin

2012 Feb 04-5
Free and Open source Software Developers' European Meeting (FOSDEM), Brussels

2012 Jan 25
Commission scheduled to publish review of Data Protection Directive per Euractiv. German High court criticizes EU takeover of Member State competencies per German-language discussion in Germany's DP forum Announcement has been delayed until "late February or March" per law blog

2012 Jan 25-27
Computers, Privacy and Data Protection (CPDP)European Data Protection: Coming of Age, Brussels Belgium, to include on first day at 9.00 am a session on "ICT for active ageing: improving care, enhancing autonomy or extending surveillance?"

2012 Jan 18
1. Hearing in Congress on SOPA, 2. "Blackout" at Wikipedia

2012 Jan 17
Leveraging Open Identity and Personal Data, NIH Campus, Bethesda MD

2012 Jan 01
Launch of the European Year of Active Ageing and Solidarity between Generations

2012 Jan 01
Launch of the European month of network and information security for all

2011 Dec 27-30
28th Chaos Communication Club Congress, Berlin
yes


See also the Wiki listing Calls for Papers on the social Web, jaap-Henk Hoepman's calendar , WikiCFP a semantic wiki for Calls For Papers, the international calendar maintained by the Future of Privacy and the EU Calendar, Open Source Observatory and Repository (OSOR), Freie Termine FOSS by FSFE Zurich

The two lists of mutual-assistance groups below comprise works-in-progress (Disclaimer: PEGASUS members take no responsibility for the reliability of the services offered on any of the Websites cited)

Sample EU Member State
Mutual-assistance group Website
Contact person
Mostly funded by:



Public sector
Private sector
Members/ Foundation
All EU member states
European Alliance Personal Medicine (EAPM)

x



Free Software Foundation Europe



x

The Voluntary European Year for Everyone program



x

Finance-watch.org



x

Add Me Community of Practice

x



Open Forum Europe



x

ANEC.eu agenda for the digital consumer in PDF

x



"Reclaim Your Data" campaign



x

Access for All
Isacker


x

Respect My Net campaign to name and shame operators restricting access to the Internet





European Privacy Association



x

European Citizens' Initiative, http://bit.ly/g3Bo0q

x


Austria
ARGE Daten - Austrian Society for Data Protection and Privacy (secure Website)



x

Mksult GmbH



x
Belgium
Internet Society Belgium Task Force e-Security



x

Municipal External Advice Council, Kortrijk

x



accessforall.eu





Belgium Fundamental Research on Cryptography and Info. Security, KU Leuven

x



European Privacy Association, Brussels





Leuven Security Excellence Consortium LSEC



x
Finland
Finnish Information Security Association (FISA, Tietoturva ry in Finnish)

x


Luxembourg
CLUSIL - CLUb de la Sécurité de l'Information Luxembourg



x
Germany
Initiative "Internet erfahren" Seniors' Organisations BAGSO e.V., Competence Centre Technology-Diversity-Equal Opportunity e.V. and Digital Opportunities Foundation.
BAGSO is coorganizer of this portal verbraucherfinanzwissen.de

x

x

Internet "fosterparents" offers online modules on Finance, Security, Health

x



Every Age Counts (in German)

x



Deutschland sicher im Netz


x


Rheinhessen Chamber of Commerce, IT security competence centre, events calendar

x
x


Fraunhofer Darmstadt on eID and health cards, events calendar

x
x


Arbeitsgruppe Identitätsschutz im Internet e.V., Bochum



x

Information Card DA-CH (in German), regional affiliate of the Foundation (English, see "Global" section below)



x

Humanistische Union, Berlin, "Reclaim Your Data" campaign (in German, see also above All EU MS)



x

Netzpolitik, Berlin (in German)



x

digitalegesellschaft.de (in German)



x

Tactical Technology Collective



x

CryptoParty, Berlin, cryptoparty handbook



x

Network in Baden-Wuerttemberg
In this Land the Council of Seniors and the Assn of Volkshochschulen are planning a campaign for 2010 (press release in German PDF).

x

x

Personal data security consultants www.praemandatum.de 2010 Dec.: Newspaper article claiming that such consultants will become as common as tax preparers (in German)


x


www.desine.de


x


www.onlinebanking-forum.de


x


Linux training on Lake Constance www.bodenseo.de/en/


x


Linux training in N.Germany http://linuxhotel.de/


x


Internet-Training for Seniors in Leipzig





FiFF (German only) for instance, their 2009 lecture on "Privacy Tools - GnuPG, TrueCrypt and Tor"



x

Physicians' Assoc. KV-SafeNet (thanks to MBlaurock for this entry)



x

Gov 2.0 (in German, Ms. Anke Domscheit-Berg is a board member)



x

opendata-network



x

German Privacy Foundation (English at bottom of page) Mentoring in using encryption.



x

"CLUSIL - CLUb de la Sécurité de l'Information Luxembourg





Netherlands
My Digital World (in Dutch)

x



Platform Identity Management Nederland (PIMN)


x


Privacy & Identity Lab: a new Dutch expertise centre, The Hague

x



Free Knowledge Institute (FKI), Wiki



x

Qiy, an independent infrastructure where an individual can create a personal domain



x
Norway
Norsk Regnesentral (Norwegian Computing Center, NR)



x
Spain





Sweden





Switzerland
Third Age Online (TAO) Project

x
x


Association «Data and Health»



x

research and advisory centre based in Geneva, www.silverworkers.ch


x


www.seniors-geneve.ch (in French)

x



Information Security Society Switzerland (described in French and English)



x

www.swisssecurityday.ch/


x


www.compisternli.ch


x
x

Swiss Internet User Group "/ch/open"



x

www.opensource.ch



x

Joachim Jakob's blog privatsphaere.org





Swiss Privacy Foundation



x

computeria.ch/


x

United Kingdom
Getsafeonline U.K. seniors have a "Simplicity" Linux-driven computer available, which has a more complex software built into it (as featured on the BBC). People can graduate to the more complex software when they have conquered the initial simple navigation process.

x



Another Linux-based computer-distribution programme called ALEX compared to "Simplicity" on the BBC

x



Society of Later Life Advisors





Money Advice Service

x



AGE, UK, publishers of the book Manage Money Online by: Jennifer Bailey





Open Rights Group



x

Looking Local and Credit Union

x

x

Citizens Advice bureaux

x



Cardiff University Ageing Science and Older People Network (CASiOPe)








North America
Self-help group Website
Contact person
Mostly funded by:



Public sector
Private sector
Members/ Foundation

Customer Commons



x

The Boston Quantified Self Meetup Group


x


W3 Consortium's project on Web Accessibility and Older People

x



Center for Tech. and Aging

x



Center for Digital Democracy



x

FLOH Club
Florence Henderson

x


Silver Nation national authentication program.


x


Society of Certified Senior Advisors


x


staysafeonline, a "public private partnership"

x
x


Linux computer with proprietary interface


x


Wilders Security Forums


x


open source portal on e-government, a "community service" sponsored by Red Hat, Inc., an "American software company that is engaged in providing open source software products to the enterprise community" (per Wikipedia).


x


Privacy Rights Clearinghouse



x

EPIC's bibliography on genetic privacy



x

Bibliography of Privacy in Research Ethics and Law (PRIVEAL)



x

Pam Dixon's World Privacy Forum



x

Beth Givens' Privacy Rights Clearinghouse



x

thedatamap.org



x

Dr. Deborah Peel's Patient Privacy Rights



x

Sharon Terry's reg4all


x
x

http://wikigenetics.org/


x
x

http://wikiadvocacy.org



x

Digital Estate Resource, "an online repository for estate lawyers who need to learn about how to incorporate digital assets into estate planning"
Dazza Greenwood


x

Texas Lyceum as featured in The Economist on



x

Conventional solutions to boomers' problems


x


Planet Identity "an aggregation of public weblogs related to Identity Management"





Riseupservices, Seattle WA



x

Docracy - open legal documents with free e-signing


x


Online Privacy Alliance (OPA)


x


Stanford Law School’s Center for Internet and Society


x


Harvard Law School’s Center for Internet and Society


x


Data Privacy Lab at Harvard

x
x
x

2010: video discussion with HLS's Clippinger





http://ecitizenproject.org/



x

http://www.agefriendlynyc.org links to a PDF of a 2007 WHO publication "Global Age-friendly Cities: A Guide"

x



The new Consumer Financial Protection Bureau

x



Federated Web



x

Readers of the Vendor Relationship Management (VRM) blog of Doc Searls



x
Global
International Consumer Protection and Enforcement Network (ICPEN)

x



ICPEN's consumer portal econsumer.gov

x



Hackerspaces



x

Peer to Peer (p2p) Foundation, Amsterdam



x

Higgins Project Personal_Data_Service


x


Mydex


x


The Elders (founded by Nelson Mandela, hdqted London)



x

Personal Data Ecosystem



x

Open Identity Exchange (OIX)



x

Information Card Foundation (see also "Germany" section above)



x

International Federation of Information Processing (IFIP) Technical Committee on Information Security Education



x

Ogd-privacy -- Mailing list to discuss the privacy implications of Open Government Data, limits and mitigations





Safegov,"a forum for IT providers .. dedicated to promoting trusted and responsible cloud computing solutions for the public sector" with a news aggregator

x




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